LINKS TO OTHER DISABILITY RESOURCES
LINKS TO OTHER DISABILITY RESOURCES
Updated August 23, 1999
Due to the number of resources on this page, they have been arranged into categories. Please note that many sites listed here cover a broad range of information and the categories do overlap. While every attempt has been made to keep this listing up-to-date, unfortunately we cannot guarantee the accessibility and availability of all the sites listed here. We do periodically check our links to be sure they are correct. We appreciate your patience.
Community Supports/Inclusion
- Center for Community Inclusion
"The Center for Community Inclusion, Maine's University Affiliated Program, is a partnership of people bringing together the
resources of the community and the University to improve the quality of life for people with disabilities and those they consider their
families.
We support self-determination and advocacy for people with disabilities throughout their lives. As agents for social change, we are
committed to the principles of community inclusion, interdependence and the inherent abilities of each person to contribute to
society. These principles are realized through interdisciplinary educational activities, applied research and research and policy
analysis, technical assistance and dissemination of information."
- Community Associates International
Community Associates International provides a valuable resource for people on the cutting edge of disability related issues and shares a strong commitment to a common mission. Each of the community associates offers skills, knowledge, experience, and a strong desire to assist you or your organization in the development of innovative and effective services and supports that enable people to be fully included in communities around the world.
- Inclusion Press Home Page
"Inclusion Press is a small press striving to produce readable, accessible, user-friendly books and resources about full inclusion in school, work, and community."
- Institute for Human Development
The Institute's misssion is to improve the quality of life for persons with developmental disabilities across this entire age span by promoting community inclusion, community membership, independence, productivity, and social participation; and promoting high quality and effective community-based services and individualized supports for persons with developmental disabilities and their families.
- Institute on Community Inclusion
The Institute for Community Inclusion supports the rights of children and adults with disabilities to participate in all aspects of the community.
- Institute on Community Integration
"We believe that persons with developmental disabilities should live as valued members of our communities, receiving the services and supports they need to fully develop their potential."
- Institute on Disability
The Institute is a University Affiliated Program (UAP) located at the University of New Hampshire that promotes full inclusion of people with disabilities in their communities.
- Indiana Institute on Disability and Community
Formerly the Institute for the Study of Developmental Disabilities, The Institute has long been invested in disability and community issues with a mission to improve the lives of people with disability in typical settings. The mission of the Indiana Institute on Disability and Community is to provide leadership that enables communities to
include, support, and empower people with disabilities and family members. The Indiana Institute accomplishes this by
promoting innovative practices, and policies that facilitate community membership.
- The Oaks Group
The Oaks Group is a value based stakeholder organization whose members believe persons with developmental disabilities should be fully included in the mainstream of community life, that children should have the opportunity
to grow up in families, and adults should receive the help needed to live as close as possible to the way people without developmental disabilities live.
- The Rural Institute
The Montana University Affiliated Rural Institute on Disabilities is guided by values
of independence, productivity, integration, and inclusion of individuals with
developmental disabilities and their families. The Institute is also home to the
Research and Training Center on Rural Rehabilitation Services, whose goal is to solve problems of access to transportation and housing, employment and self-employment, independent living, health and wellness, community planning, and integration faced by people with disabilities living in rural areas and those who serve them.
- Training Resource Network (TRN)
Publisher that offers resources on the full inclusion of people with disabilities in their communities, especially on the topics of supported employment, person-centered planning, supported living, and self-determination.
- TASH (formerly The Association for Persons with Severe Handicaps)
TASH is an international advocacy association of people with disabilities, their family members, other advocates, and
people who work in the disability field. TASH believes that no one with a disability should be forced to live, work, or learn in a segregated setting; that all individuals deserve the right to direct their own lives. TASH's mission is to eliminate physical and social obstacles that prevent equity, diversity, and quality of life.
- Western Connecticut Association for Human Rights (WeCAHR)
"WeCAHR advocates for the civil and human rights of people with disabilities. We are an association of families and children building communities that respect and welcome people. We educate the public consciousness and promote the understanding of human similarities.
Computers, Assistive Technology and the Internet
Bobby
Created at the Center for Applied Special Technology (CAST), Bobby is a free web-based service that helps make web pages accessible to people with disabilities. CAST is a non-profit organization whose mission is to expand opportunities for all people--especially those with disabilities--through the innovative uses of computer technology.
- The Center for Really Neat Research
The Center for Really Neat Research at Syracuse University is where imaginative thinking, cutting-edge research, uncommon resourcefulness and entrepreneurial spirit have been brought together under one unusual roof for social good. The center's work is focused on finding new paths for communication between humans with severe disabilities and computers, and to do it inexpensively. The center also is applying its new technologies to telemedicine and education.
- Disabilities, Opportunities, Internetworking, and Technology (DO-IT)
Located at the University of Washington, the Disabilities Opportunities Internetworking and Technology (DO-IT) program enlists volunteer mentors to help students with disabilities pursue careers in science, engineering and math. DO-IT participants use computers, adaptive technology and the Internet to join an electronic community and tap the program's mentoring, tutoring and networking services.
Disability Rights
-
Axis Consultation & Training Ltd.
Norman Kunc and Emma Van der Klift have spent the last 20
years working to ensure that people with disabilities are able to take
their rightful place in schools, workplaces, and communities. In 1990, Norman and Emma established Axis Consultation and
Training Ltd., and since then have been kept quite busy providing
in-service and training in the areas of inclusive education,
employment equity, conflict resolution, and other disability rights
issues.
- AMERICAN DISABLED for ATTENDANT PROGRAMS TODAY (ADAPT)
"There's no place like home, and we mean real homes, not nursing homes. We are fighting so people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions.
- Not Dead Yet
Not Dead Yet is a national activist organization which opposes the legalization of physician-assisted suicide and places emphasis on the value of life.
- The Disability Rights Activist
This
site brings together much of the information needed to enable anyone interested
in the rights of people with disabilities to work for those rights, including
tools for activists, action alerts, announcements, and information on issues
that affect the lives of people with disabilities, and contains links to
several disability rights organizations and publications.
- Disability Rights Education and Defense Fund (DREDF)
Founded in 1979 by people with disabilities and parents of children with disabilities, the Disability Rights Education and Defense Fund, Inc. (DREDF) is a national law and policy
center dedicated to protecting and advancing the civil rights
of people with disabilities through legislation, litigation,
advocacy, technical assistance, and education and training
of attorneys, advocates, persons with disabilities, and
parents of children with disabilities.
Disability Studies
- Disability Social History Project
People with disabilities have an exciting and rich history that should be shared with the world. The ways in which disabled people have acted and have been treated and viewed must be examined within the social, political, economic, and religious climates of the times and cultures. This project will present images and information about disabled historical figures and events in an attempt to give an introduction to disability social history.
- Disability Studies in the Humanities
Features scholarly resources, DS-HUM listserv information, syllabi, announcements and web links on Disability Studies. This site, especially the interdisciplinary bibliography, is frequently updated.
- Society for Disability Studies
The Society for Disability Studies (SDS) is a nonprofit scientific and educational organization composed of social scientists, scholars in the humanities, disability rights advocates, providers, and agency personnel concerned
with people with disabilities.
Early Childhood/Children
- see also Family Support
- Family Voices
"We are families from throughout the United States who have children with special health needs. We are also caregivers, professionals, and friends whose lives have been touched by these children and their families. We are a diverse group, representing a wide variety of children, health conditions, families, and communities. Our concern for children brought us together."
- Federation for Children with Special Needs
Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
- Kids Together
This non-profit organization, co-founded by parents and organized by volunteers, supports the belief that children with disabilities, like all children, have the need to be welcomed, cherished and embraced in our communities. This site
is designed to provide helpful information and resources to enhance the quality of life for children and adults with disabilities, and communities as a whole.
Family Supports
- see also Early Childhood/Children
- Family Village: A Global Community of Disability-Related Resources
Family Village is a glocal community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families, and those that provide them services and supports.
- National Parent Network on Disabilities (NPND)
NPND was established to provide a presense and national voice for parents of children, youth, and adults with special needs.
- Parent Advocacy Coalition for Educational Rights (PACER) Center
PACER Center is a nonprofit, tax exempt Minnesota statewide organization begun in 1977. PACER's
mission is to improve and expand opportunities that enhance the quality of life for children and young
adults with all disabilities--physical, mental, emotional, learning--and their families. PACER now offers
20 major programs, including Parent Training programs, programs for students and schools, and
technical assistance to parent centers both regionally and nationally.
- Through the Looking Glass (TLG)
This
is a community, non-profit organization which emerged from the disability
independent living movement and whose mission has been to create, demonstrate
and encourage resources and model early intervention services which are
non-pathological and empowering. TLG has pioneered clinical and supportive
services, training and research serving families in which one or more members--whether
parent or child--has a disability or medical issue.
Gender and Disability
- The Center for Research on Women with Disabilities (CROWD)
The Center for Research on Women with Disabilities (CROWD) is a research
center that focuses on issues related to health, aging, civil rights, abuse, and
independent living. CROWD's purpose is to promote, develop, and
disseminate information to expand the life choices of women with
disabilities so that they may fully participate in community life. More
specifically, researchers develop and evaluate models for interventions to
address specific problems effecting women with disabilities.
- International Leadership Forum for Women with Disabilities
This is a continuing information web site. The purpose the forum is to create an international support network with an emphasis on technical assistance for women with disabilities. This web site was created to provide information beyond the 1995 international women's conference in Beijing, China and to be enhanced with new information as it becomes available over time.
- Women and Disability Resources
These are social, academic, activist, and just-for-fun online resources collected on women and disability by Barbara Robertson.
- Women with DisAbilities
To help women overcome social, financial, physical, or other kinds of barriers to
health care services and information, the National Women's Health Information
Center (NWHIC) created this web site - Women with DisAbilities. It puts a wealth of
useful information together into one place for women with disabilities, caretakers,
health professionals, and researchers. This site addresses numerous issues of particular interest to women with
disabilities, such as abuse, parenting, and sexuality. It also offers general
resources about critical health issues for a variety of disabilities, including physical,
neurological, hearing, speech, and visual impairment. It will also provide information
on psychiatric, learning, and developmental disabilities.You will also find
information on federal laws and regulations that protect disabled citizens, services
and support resources, news about medical research, statistical information on
disabled women, and information for healthcare professionals on improving
healthcare access for women with physical limitations.
Housing
- The National Home of Your Own Alliance
The
National Home of Your Own Alliance is a partnership between the Federal
government and nationally recognized advocates and leaders whose goal is
to create housing and support opportunities that people choose and control.
Inclusive Education
- New York SAFE
SAFE
is a national coalition of families, consumers and advocates united in
an effort to promote the availability of quality educational services to
all students, including those with disabilities, in their neighborhood
schools. New York SAFE's web page includes information about all its active
chapters and the names and phone numbers of each chapter's officers and
contact people. New York SAFE is looking to provide information to people
who are interested in inclusion throughout New York State.
- Inclusion Press Home Page
"Inclusion
Press is a small press striving to produce readable, accessible, user-friendly
books and resources about full inclusion in school, work, and community."
Information Dissemination
Magazines, Periodicals and Other Media
- Ability Network Magazine
A disability-oriented magazine with articles authored, for the most
part, by people with disabilities.
- The Disability Resources Monthly Guide to Disability Resources on the Internet
"We disseminate information about books, pamphlets, magazines, newsletters, videos, databases, government agencies, nonprofit organizations, telephone
hotlines and on-line services that provide free, inexpensive or hard-to-find information to help people with disabilities live independently."
- Electric Edge: Online Edition
of Ragged Edge Magazine
This online edition of Ragged Edge magazine (the successor
to Disability Rag) includes the best writing today about
the most "ragged issues"--assisted suicide, long-term care, rights, access,
and covers the disability experience and what it means to be a crip at
the turn of the millenium.
- Mainstream Magazine
Online
version of the well-known disability magazine.
- New Mobility Magazine
"Disability
is news, art, politics, humor, healing, recreation, travel, show-biz and
rehab-biz, and that's what we do."
- On A Roll
The only commercial,
syndicated radio talk program for the disability community.
Managed Care
- Disabilities & Managed Care
This site, developed by the Office of the Assistant Secretary for Planning and Evaluation (APSE), provides information relevant to researchers, policymakers, consumers, and advocates on a wide range of issues associated with managed care and disabilities.
- The National Clearinghouse on Managed Care and Long-Term Suports and Services for People with Developmental Disabilities and Their Families
The primarly objective of the Clearinghouse is to meet the informational needs of individuals with disabilities, their families, policy makers, service providers, advocates, and others in the area of managed care and long term supports and services.
Multiculturalism and Disability Culture
- Institute on Disability
Culture
"People with disabilities have forged a group identity. We share
a common history of oppression and a common bond of resilience. We generate
art, music, literature, and other expressions of our lives, our culture,
infused from our experience of disability."
National and International Organizations, Councils, Institutes, and Associations
- American Association of People with
Disabilities (AAPD)
AAPD is a non-profit, non-partisan, cross-disability organization whose
goals are unity, leadership and impact.
- The Arc Homepage
The Arc (formerly Association for Retarded Citizens of the United States) is the country's largest
voluntary organization committed to the welfare of all children and adults with mental retardation and
their families.
This is a very large and developing site. It offers an impressive assortment
of articles, position papers, links, legislative alerts and more.
-
Consortium for Citizens with Disabilities
(CCD)
CCD is a coalition of national disability organizations working
together to advocate for national public policy that ensure the self-determination,
independence, empowerment, integration and inclusion of children and adults
with disabilities in all aspects of society.
- Institute on Independent Living
The Institute's purpose is to promote the opportunities of persons with disabilities to gain
more personal and political power, self-determination, full participation and equality, both in
Sweden and internationally through educational activities. These activities may consist of
the production and dissemination of educational materials and information, planning and
organizing of courses, seminars and study visits.
- National Association of Developmental Disabilities Councils (NADDC)
The NADDC promotes national policy which enables individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community.
- National Association of Protection and Advocacy Systems (NAPAS)
NAPAS is a national voluntary membership organization for the federally mandated nationwide network of
disability rights agencies, protection & advocacy systems (P&As), and client assistance programs
(CAPs).
- National Council on Disability
The
National Council on Disability (NCD) is an independent federal agency making
recommendations to the President and Congress on issues affecting 54 million
Americans with disabilities. NCD's overall purpose is to promote policies,
programs, practices, and procedures that guarantee equal opportunity for
all individuals with disabilities, regardless of the nature of severity
of the disability; and to empower individuals with disabilities to achieve
economic self-sufficiency, independent living, and inclusion and integration
into all aspects of society.
- The National Organization on Disability
The
National Organization on Disability promotes the full and equal participation
of America's 54 million men, women and children with disabilities in all
aspects of life.
- People to People Committee on Disability
We were founded in 1956 by then President Dwight D Eisenhower for the purpose of reaching out with technical assistance and information to promote peace throughout the world. In these many years, our volunteer board members have assisted other nations with many projects and resources. The distinguished board of directors have expertise in everything from education, labour, diplomacy, independent living and other special areas of disability agendas.
- TASH (formerly The Association for Persons
with Severe Handicaps)
TASH is an international advocacy association
of people with disabilities, their family members, other advocates, and
people who work in the disability field. TASH believes that no one with
a disability should be forced to live, work, or learn in a segregated setting;
that all individuals deserve the right to direct their own lives. TASH's mission is to eliminate physical and social obstacles that prevent equity,
diversity, and quality of life.
- World Institute on Disability (WID)
WID is an international public policy center dedicated to carrying
out cutting-edge research on disability issues and overcoming obstacles
to independent living.
Permanency Planning
- Spaulding for Children
Spaulding for Children believes every child is adoptable and every child
deserves a permanent family. This multi-faceted organization provides help to children who
wait the longest for permanency and support services for their
adoptive, foster and kinship families. Nationwide, Spaulding's NRC
provides training, consultation and informational materials for
professionals, organizations and parents.
Perspectives of People with Disabilities
Research Centers
- see also Community Supports/Inclusion
- Facilitated Communication Institute
This
site offers articles, research summaries and other material relating to
FC.
- GLADNET
The Global Applied Disability
and Information Network on Employment and Training, better known as GLADNET,
brings together research centres, universities, enterprises, government
departments, and other groups together for the promotion of research as
well as the collection, analysis and exchange of information concerning
people with disabilities and work.
- Institute for Disability Policy
The Institute for Disability Policy conducts a wide range of applied research projects
related to the full integration of persons with disabilities into the community. The Institute is committed to the inclusion of people with disabilities in the design and operation of applied policy research efforts, and to
collaborative efforts with a wide range of organizations within the disability community.
- National Center for the Dissemination
of Disability Research (NCDDR)
The NCDDR's purpose is to enhance the
dissemination efforts of NIDRR-funded research projects and to increase
the accessibility of research outcomes for the benefit of their consumers,
particularly those from minority backgrounds.
- Rehabilitation Research and
Training Center on Aging with Mental Retardation
Located the University
of Illinois at Chicago, the RRTCAMR's mission is to promote the independence,
productivity, community inclusion and full citizenship of older adults
with mental retardation through a coordinated program of research, training,
technical assistance and dissemination activities.
- State of the States in Developmental Disabilities
Established in 1982 to investigate the determinants of public spending for mental
retardation/developmental disabilities (MR/DD) services, this project maintains a 20-year longitudinal record of revenue, spending, and programmatic trends in the 50 states and the District of Columbia. Analysis of the rich detail of the data base reveals the impact over time of federal and state fiscal policy, and illustrates important service delivery trends in the states in community living, public and private residential institutions, family support, supported employment, supported living, Medicaid Waivers, demographics, and related areas.
Resources for Advocacy
- Americans with Disabilities Act (ADA) Technical Assistance Program
The ADA Technical Assistance Program is a federally funded network of grantees which provides information, training, and technical assistance to businesses and agencies with duties and responsibilities under the ADA and to people with disabilities with rights under the ADA. This program also coordinates ten regional Disability and Business Technical Assistance Centers (DBTACs), which provide information and referrals, technical assistance, public awareness, and training on all aspects of the ADA.
-
Axis Consultation & Training Ltd.
Norman Kunc and Emma Van der Klift have spent the last 20
years working to ensure that people with disabilities are able to take
their rightful place in schools, workplaces, and communities. In 1990, Norman and Emma established Axis Consultation and
Training Ltd., and since then have been kept quite busy providing
in-service and training in the areas of inclusive education,
employment equity, conflict resolution, and other disability rights
issues.
- Disability Advocacy Work With Networking (DAWWN)
This site has links to several sites related to disability advocacy, assistance, education, and more.
- The Disability Rights Activist
This
site brings together much of the information needed to enable anyone interested
in the rights of people with disabilities to work for those rights, including
tools for activists, action alerts, announcements, and information on issues
that affect the lives of people with disabilities, and contains links to
several disability rights organizations and publications.
- The Judge David L. Bazelon Center for Mental Health Law
"The Judge David L. Bazelon Center for Mental Health Law is a nonprofit legal
advocacy organization based in Washington D.C. Our name honors the federal
appeals court judge whose landmark decisions pioneered the field of mental health
law, and our advocacy is based on the principle that every individual is entitled to
choice and dignity. For many people with mental disabilities, this means something
as basic as having a decent place to live, supportive services and equality of
opportunity."
- Disability Rights Education and Defense Fund (DREDF)
Founded in 1979 by people with disabilities and parents of children with disabilities, the Disability Rights Education and Defense Fund, Inc. (DREDF) is a national law and policy
center dedicated to protecting and advancing the civil rights
of people with disabilities through legislation, litigation,
advocacy, technical assistance, and education and training
of attorneys, advocates, persons with disabilities, and
parents of children with disabilities.
- N. Neal Pike Institute on Law and Disability
The N. Neal Pike Institute on Law and Disability was established at Boston University School of Law in 1983 to advance the study, research, and development of disability law. Its work is made possible through the generous support of Mr. N. Neal Pike, a distinguished lawyer (Boston University School of Law, Class of 1937) and lifelong advocate for individuals with disabilities.
Safeguards/Abuse
Self-Advocacy and Self-Determination
- Advocating Change Together
Advocating Change Together (ACT) is a nonprofit disability rights organization run by and for people with developmental and other disabilities. We are committed to freedom, equality, and justice for all people with disabilities.
- International Conference
on Individualized Funding & Self-Determination
During the past decade individualized funding and self-determination have
become focal points for the world-wide disability movement. Individualized funding is
now recognized as a fundamental requirement for self-determination, enabling
people to purchase, and therefore gain control over, the supports needed to enjoy
meaningful lives in the community. Over 1,000 people from around the world are expected to participate including
people with disabilities, family members, community advocates, professionals,
service providers, researchers, administrators, and government officials.
- Individualized Funding Information Resources
This site provides comprehensive information about the development of ways that people with disabilities can gain
control over the funds to pay for the supports they need--a crucial step towards self-determination and citizenship.
- National Program Office on Self-Determination
This Robert Wood Johnson Foundation program adheres to the four principles of self-determination: FREEDOM, AUTHORITY, SUPPORT, and RESPONSIBILITY.
- Northamptonshire People First
An
organization from the United Kingdom of people with disabilities speaking
up for themselves. This site includes links to several other self-advocacy
organizations, and has two internet mailing lists on self-advocacy, one
for self-advocates to speak with each other and one for self-advocates
and the people supporting self-advocates to speak with each other.
- People First of Tennessee
A disability rights organization run by and for people with disabilities.
- Self Advocates Becoming Empowered
"OUR MISSION: To ensure that people with disabilities are treated as equals and that they are given the same
decisions, choices, rights, responsibilities, and chances to speak up to empower themselves;
opportunities to make new friends; and to learn from their mistakes."
Supported Employment
- Employment Support Institute
An
organization that helps people make better decisions about employment options
and policies affecting people with disabilities.
- Rehabilitation Research & Training Center on Workplace Supports
"The purpose of this center is to identify factors that enhance or inhibit
businesses from tapping into a pool of potential employees. Let us be your
gateway to information, resources, and services regarding the employment of
people with disabilities."
- Training Resource Network (TRN)
Publisher
that offers resources on the full inclusion of people with disabilities
in their communities, especially on the topics of supported employment,
person-centered planning, supported living, and self-determination.
Supported Living
- see also Community Supports/Inclusion
- Supported Life Institute
"A supported life is a life that is rich in qualities a person most desires, and one which shows how connected we all are to each other. It is a life which: grows from a person's own choices, desires and dreams; it is not controlled by what kind of services are currently available; goes beyond just meeting a person's basic needs, to reaching a rich quality of life; includes all areas of a person's life; is always changing throughout a person's life; is the kind of life we all want and is not uniqute to people who happen to have disabilities."
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